STORM is a collaborative effort that implements quality improvement projects and provider education with pediatric and hematology practices to build a functional, sustainable, synergistic network to improve the outcomes and care for patients with sickle cell disease (SCD) in the Midwest.

Our MISSION is to improve the quality of life and health outcomes for all Midwesterners with sickle cell disease.

Our Goals:

  • Increase the number of providers treating individuals with sickle cell disease (SCD) using the National Heart, Lung and Blood Institute (NHLBI) Evidence-Based Management of SCD Expert Panel Report;
  • Expand our STORM TeleECHO telementoring project to increase the number of providers administering evidence-based sickle cell care;
  • Develop and implement strategies, such as quality improvement and provider education to improve access to quality care with an emphasis on individual and family engagement/partnerships, adolescent transition to adult life, and care in a medical home.

The STORM Network is supported by The Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau award U1EMC27863 from the Sickle Cell Disease Treatment and Demonstration Program. The content is solely the responsibility of the authors and does not necessarily represent the official views of this agency. The STORM Regional Coordinating Center are faculty and staff of Cincinnati Children’s Hospital Medical Center.