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Providers

STORM is a multicenter collaborative network working to efficiently improve how our Clinical Community Spokes (CCS) deliver care to patients with sickle cell disease. We strive to give providers access to current and accurate resources that they can use to educate both themselves, their patients, and their patients' families. Our overarching goal is to improve the quality of life and health outcomes for all Midwesterners with SCD. We will accomplish our goal and aims via the following activities:

  • Expand access to care by leveraging a sustainable regional network of clinics and community partners.
  • Enhance provider education and workforce development through telementoring programs (ECHO) focused on SCD management, behavioral health, transition to adult care, emergency care, and quality improvement.
  • Increase use of disease-modifying therapies, including hydroxyurea, for eligible patients.
  • Improve quality of care and patient outcomes through quality improvement initiatives and data-driven practices.
  • Support successful transition to adult care for adolescents with SCD.
  • Address behavioral health and social barriers through community partnerships and stakeholder engagement.
  • Track and improve quality-of-life indicators, including emergency department utilization and high school graduation rates.
  • Develop a regional action plan to identify and address SCD needs and service gaps across the Midwest.
  • Engage patients, families, and communities through a regional Community Advisory Board and collaborative partnerships.

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